Commentary

“See the half-filled glass and move forward” parental experience of a single mother of two daughters with cognitive disabilities

  • The aim of this research is to give voice to a single mother of two grown up daughters with cognitive disabilities in order to examine her parental experience. The narrative approach is used in this study. The research tool is an in-depth narrative interview. The interview was recorded and transcribed and the findings divided into key themes that were analyzed in a holistic fashion combining formative and content related aspects. The research finds that this special type of parenting is complex and full of challenges. The mother adapted ways of coping that helped her on her parental journey. Her means of coping were cognitively produced and focused on emotions, with three guiding principles throughout: Seeing the glass as half full, relating to her daughters as normal and the desire to look after her daughters herself and not move them to an external framework. It appears that her optimistic personality influenced her positive parenting style. The research also found that support provided by nuclear family contributed to reinforcing the mother’s internal resources and enabled her to maintain a balance between caring for her daughters and developing a personal life and even a new relationship. We hope that insights from this study will enable educational and professional staff to provide appropriate and effective support to mothers of children with cognitive disabilities and consequently create a platform for fruitful and effective collaborations between them and educational and welfare institutions as well as framework that accompany their children after their school years.

    Citation: Rivka Hillel Lavian. “See the half-filled glass and move forward” parental experience of a single mother of two daughters with cognitive disabilities[J]. AIMS Public Health, 2018, 5(1): 64-88. doi: 10.3934/publichealth.2018.1.64

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  • The aim of this research is to give voice to a single mother of two grown up daughters with cognitive disabilities in order to examine her parental experience. The narrative approach is used in this study. The research tool is an in-depth narrative interview. The interview was recorded and transcribed and the findings divided into key themes that were analyzed in a holistic fashion combining formative and content related aspects. The research finds that this special type of parenting is complex and full of challenges. The mother adapted ways of coping that helped her on her parental journey. Her means of coping were cognitively produced and focused on emotions, with three guiding principles throughout: Seeing the glass as half full, relating to her daughters as normal and the desire to look after her daughters herself and not move them to an external framework. It appears that her optimistic personality influenced her positive parenting style. The research also found that support provided by nuclear family contributed to reinforcing the mother’s internal resources and enabled her to maintain a balance between caring for her daughters and developing a personal life and even a new relationship. We hope that insights from this study will enable educational and professional staff to provide appropriate and effective support to mothers of children with cognitive disabilities and consequently create a platform for fruitful and effective collaborations between them and educational and welfare institutions as well as framework that accompany their children after their school years.


    With global obesity on the rise, the need for research concerning the complexity of risk factors is more important than ever. While the increase of the high-calorie, low-nutrient food supply correlates with rising weights, new studies across disciplines reveal the intricacy of the environmental and circumstantial phenomena that influence obesity rates and behaviors for at-risk individuals. AIMS Public Health is pleased to present this special issue entitled “Obesity and Food Intake in Vulnerable Populations” in support of this research. This edition contains two research reviews, a research study, and a brief report related to obesity and human behavior.

    In the issue’s first article, McGuigan and Wilkinson [1] assess whether obesity is a factor in avoiding healthcare through the examination of related journal articles published over a 22-year period, finding that perceived bias, along with other factors, contributes to obese patients evading care. Meanwhile, Vilas, Rubalcava, Becerra, and Para [2] investigate how gender dysphoria and its associated treatment contribute to obesity through hormonal therapies and lifestyle changes, advocating for the inclusion of dietary education in treatments. On the other end of the spectrum, Kjøllesdal and Holmboe-Ottesen [3] evaluate the affect of a mother’s dietary choices and food intake on the prevalence of low birth weight babies. Through the analysis of studies on diet and birth weight in high-income countries, the authors found that processed food and sugar intake associate with low birth weights. Finally, Divin and Zullig [4] explore a different aspect of vulnerable populations and public health in studying the relationship between adolescent non-medical prescription drug use and suicide through responses in the National Youth Risk Behavior Survey.

    The topics investigated in these articles illustrate the highly complicated and multifaceted relationships between vulnerable populations and public health outcomes, with a focus on healthcare and food intake. The theories explored provide a model for researchers seeking to demystify risk factors for and causes of obesity beyond the simple calorie-exercise balance explanation. The authors in this issue acknowledge the role that outside influences can play in healthy behaviors, and advocate for the consideration of these environmental and interactive factors by professionals in the medical establishment.

    Conflict of Interest

    Author declares no conflict of interest in this paper.

    [1] Ben E, Milstein E, Sagiv N, Mapping Centers for Families with Children with Special Needs-Research Report. Myers JDC Brookdale Institute: Center for Research of disability and Employment of Special Populations, University of Haifa, 2011. Available from: http://brookdaleheb.jdc.org.il/_Uploads/PublicationsFiles/581-11-Mapping-Support-ES-HEB.pdf (In Hebrew).
    [2] Kaufman T (2008) Life in the shadow of disease-Influence of Mental Illness on Healthy Siblings. Available from: http://www.hebpsy.net/articles.asp?id=1723 (In Hebrew).
    [3] Katzenelson A (2005) What's Between Parents and Children: Psychology of parents and children. Netanya: Amihai (In Hebrew).
    [4] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 31–51.
    [5] Tyler Y (2001) Family's Coping with Exceptional Children. Jerusalem: Szold Institute (In Hebrew).
    [6] Salomon S, Yirmiah N, Korin-Kari N, et al. (2007) Parenting and Autism: Attachment, Parental Insight and Accepting diagnosis, In: Cohen, E. (Ed.), Parenting Experience: Relationships, Coping and Development, Kiryat Bialik: Ach Publications (In Hebrew), 253–276.
    [7] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 35–51.
    [8] Jungbauer J, Angermeyer MC (2002) Living with Schizophrenic Patient: A Comparative Study of Burden as it Affects Parents and Spouses. Psychiatry 6: 110–123.
    [9] Brown MA, McIntyre LL, Crnic KA, et al. (2011) Preschool children with and without developmental delay: Risk, parenting, and child demandingness. J Ment Health Res Int Dis 4: 206–226.
    [10] Olsson MB, Hwang CP (2008) Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities. J Int Dis Res 52: 1102–1113. doi: 10.1111/j.1365-2788.2008.01081.x
    [11] Churchill SS, Villareale NL, Monaghan TA, et al. (2010) Parents of children with special health care needs who have better coping skills have fewer depressive symptoms. Matern Child Health J 14: 47–57. doi: 10.1007/s10995-008-0435-0
    [12] Yuen SL, Wai PL (2003) Quality of life parents who have children with disabilities. Hong Kong Journal of Occupation Therapy 13: 19–24. doi: 10.1016/S1569-1861(09)70019-1
    [13] Davis NO, Carter AC (2008) Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics. J Autism Dev disord 38: 1278–1291. doi: 10.1007/s10803-007-0512-z
    [14] Dillon-Wallace JA, Mcdonagh SH, Fordham LA (2014) How Stable is the Well-Being of Australian Mothers Who Care for Young Children with Special Health Care Needs? J Child Fam Stud 23: 1215–1226. doi: 10.1007/s10826-013-9782-6
    [15] Barker ET, Hartley SL, Seltzer MM (2011) Trajectories of emotional well-being in mothers of adolescents and adults with autism. Dev Psychol 47: 551–561. doi: 10.1037/a0021268
    [16] Hartley S, Seltzer MM, Hong J, et al. (2012) Cortisol response to behavior problems in FMR1 premutation mothers of adolescents and adults with fragile X syndrome: A diathesisstress model. Int J Behav Dev 36: 53–61. doi: 10.1177/0165025411406857
    [17] Rand Y, Shkolnik D (2009) Modes of existence: theoretical, scientific and applicative aspects. Tel Aviv: Mofet Institute.
    [18] Mishori E (2014) The Book of Life Journey with Autism: the Life Stories of Parents. Tel Aviv: Mofet Institute, 22: 142–143.
    [19] Tiferet S, Elitzur Y (2007) Coping Crisis and Motherly Growth as Response to Chronic Pediatric Disease, In: Cohen, E. (Ed.), Parenting Experience: Relationships, Coping and Development, Kiryat Bialik: Ach Publications (In Hebrew), 303–330.
    [20] Van RM (2007) Families of Children with Down Syndrome: Responding to "A Change in Plans" with Resilience. J Pediatr Nurs 22: 116–128. doi: 10.1016/j.pedn.2006.07.004
    [21] Antonovsky A (1998) The Salutogenic Model as a Significant Theory in Health Promotion. Megamot 39: 170–181.
    [22] Ellingsen R, Baker BL, Blacher J, et al. (2014) Resilient parenting of preschool children at developmental risk. J Int Dis Res 58: 664–678. doi: 10.1111/jir.12063
    [23] Baker JK, Seltzer MM, Greenberg JS (2012) Behavior problems, maternal internalizing symptoms and family relations in families of adolescents and adults with fragile X syndrome. J Int Dis Res 56: 984–995. doi: 10.1111/j.1365-2788.2012.01580.x
    [24] Smith LS, Anderson KA (2014) The Roles and Needs of Families of Adolescents with ASD. Remedial Spec Educ Rase 35: 114–122.
    [25] Heiman T (2001) Resilience in Parents of Children with Special Needs, In: Issues in special Education and Rehabilitation, 16: 37–47.
    [26] Grant G, Ramcharan P, Flynn M (2007) Resilience in Families with Children and Adult Members with Intellectual Disabilities: Tracing Elements of A Psycho-Social Model. J Appl Res Int Dis 20: 563–575. doi: 10.1111/j.1468-3148.2007.00407.x
    [27] Cohen E (2007) Parental coping and Treatment of Parents. In: Cohen, E. (Ed). Parenting Experience: Relationships, Coping and Development, pp. 20–21. Kiryat Bialik: Ach Publications (In Hebrew).
    [28] Gilad D (2007) Independent Living of People with Disabilities in the Community: The Place of Family. University of Haifa and Joint Israel (In Hebrew), 22–45.
    [29] Singer GH, Ethridge BL, Aldana SI (2007) Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Dev Dis Res Rev 13: 357–369.
    [30] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 31–51.
    [31] Lhulman K, Bustan N (2012) Connection between Educational Integration and the Tenndency of Parents of Children with ASD to Remove the Children from Home. Mifgash-La'Avoda Hinihit Sotzialit 36: 91–110.
    [32] Spector-Marzel G (2010) Alternative Mechanisms as Narrative Identity: Modle for the Interpretation of Narratives, In: Kacen L. & Krummer-Nevo, M., Analyzing Data in Qualitative Research, Beer-Sheba: Ben Gurion University (In Hebrew), 63–96.
    [33] Shkedi A (2003) Words of Meaning-Qualitative Research-Theory and Practice. Tel Aviv: Ramot (In Hebrew), 69–73.
    [34] Shlasky S, Alpert B (2007) Ways of Writing Qualitative Research-from Deconstructing Reality to Its Construction as a Text. Tel Aviv: Mofet/Macam (In Hebrew).
    [35] Denzin NK, Lincoln YS (2005) Introduction: The discipline and practice of qualitative research, In: Denzin NK & Lincoln YS (Eds.), Handbook of Qualitative Research, 3rd ed., 1–32.
    [36] Lieblich A, Tucal-Mashiach R, Zilber T (2010) Between the Whole and Its Parts and between Content and Form, In: Kacen L. & Krummer-Nevo, M., Analyzing Data in Qualitative Research, Beer-Sheba: Ben Gurion University (In Hebrew), 17.
    [37] Heiman, T (2001) Resilience in Parents of Children with Special Needs. Issues in special Education and Rehabilitation 16: 37–47.
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