Research article

Psychosocial problems among mothers of children with cerebral palsy attending physiotherapy outpatient department of two selected tertiary health centres in Ogun state: A pilot study

  • Received: 10 February 2019 Accepted: 13 June 2019 Published: 21 June 2019
  • Background: Caring for a child with cerebral palsy (CP) can be exhausting and stressful. There is paucity of information on the consequence of having a child with CP on mothers of these children. This study explored psychosocial problems encountered by mothers of children with CP receiving physiotherapy care in two selected tertiary health centres in Ogun State, Nigeria. Methods: A qualitative study was conducted through focus group discussion (FGD) utilizing 17 questions identified in the literature as a FGD guide. Participants were seven mothers of children with CP. The framework approach was used for thematic analysis of data. Results: The psychosocial challenges encountered by the mothers were associated with nine common sub-themes. These are: (i) stress of caring for over dependent child; (ii) mothers’ restricted participation in the society; (iii) financial constraint experienced by the mothers of children with CP; (iv) health problems experienced by mothers of children with CP; (v) feelings of uncertainty about the child’s future; (vi) society’s negative perception of child’s problems; (vii) support obtained by the caregivers from others; (viii) availability of support from healthcare facilities; and (ix) Personal belief about condition. Conclusion: Mothers of children with cerebral palsy experience substantial psychological and social problems that are often ignored by the general populace.

    Citation: Ogunlana Michael, Oyewole Olufemi, Falola Jasola, Davis Abigail, Lateef Adetutu, Adepoju Modinat. Psychosocial problems among mothers of children with cerebral palsy attending physiotherapy outpatient department of two selected tertiary health centres in Ogun state: A pilot study[J]. AIMS Medical Science, 2019, 6(2): 158-169. doi: 10.3934/medsci.2019.2.158

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  • Background: Caring for a child with cerebral palsy (CP) can be exhausting and stressful. There is paucity of information on the consequence of having a child with CP on mothers of these children. This study explored psychosocial problems encountered by mothers of children with CP receiving physiotherapy care in two selected tertiary health centres in Ogun State, Nigeria. Methods: A qualitative study was conducted through focus group discussion (FGD) utilizing 17 questions identified in the literature as a FGD guide. Participants were seven mothers of children with CP. The framework approach was used for thematic analysis of data. Results: The psychosocial challenges encountered by the mothers were associated with nine common sub-themes. These are: (i) stress of caring for over dependent child; (ii) mothers’ restricted participation in the society; (iii) financial constraint experienced by the mothers of children with CP; (iv) health problems experienced by mothers of children with CP; (v) feelings of uncertainty about the child’s future; (vi) society’s negative perception of child’s problems; (vii) support obtained by the caregivers from others; (viii) availability of support from healthcare facilities; and (ix) Personal belief about condition. Conclusion: Mothers of children with cerebral palsy experience substantial psychological and social problems that are often ignored by the general populace.


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    Abbreviation CP: Cerebral Palsy; FGD: Focus Group Discussion; CDC: Centre for Disease Control; QSR: Quality Service Regulation;
    Acknowledgments



    Ethics approval and consent to participate: Ethical approval was sought and obtained from the Federal Medical Centre Abeokuta Health Research Ethics Committee with protocol number FMCA/470/HREC/07/2017/13. Informed consent of the parents of children with cerebral palsy was obtained before participating in this research.
    Consent for publication: Alongside the informed consent form, consent for publication was obtained from the participants with assurance that no identifying information will be published.
    Availability of data and material: The datasets generated during and/or analysed during the current study are not publicly available because they contain individual person's information but are available from the corresponding author on reasonable request.
    Competing interests: The authors declare that they have no competing interests.
    Funding: The research was self funded by the authors.
    Authors' contributions: DAO and OOO were involved in recruiting participants for the study. The FGDs were facilitated by a team, comprising one moderator (OOM, OOO), one recorder (FLJ), one observer (DAO), and two persons (AMO, LAI) taking; written notes. OOM, OOO and FLJ analysed the data and composed the manuscript. All authors critically review the manuscript.
    Acknowledgements: We acknowledge the heads of department at the selected hospitals for their support towards the success of this research. We also acknowledge the participants for their patience and candor during the FGD sessions.

    Conflict of interest



    The author declares no conflicts of interest in this paper.

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