Measuring quality and level of care provided by family caregivers of persons with dementia: protocol for a systematic review of validated instruments

Afeez Abiola Hazzan; Joyce O Hazzan; Mark Oremus; Afeez Abiola Hazzan; Joyce O Hazzan; Mark Oremus

doi:10.3934/publichealth.2021016

AIMS Public Health

2021, Volume 8, Issue 2: 206-212. doi: 10.3934/publichealth.2021016

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Protocol

Measuring quality and level of care provided by family caregivers of persons with dementia: protocol for a systematic review of validated instruments

1.
Department of Healthcare Studies, the College at Brockport, State University of New York, 350 New Campus Drive, Brockport, New York, 14420, USA
2.
School of Business, Liberty University, 1971 University Blvd., Lynchburg, VA, 24515, USA
3.
School of Public Health and Health Systems, University of Waterloo, 200 University Avenue West, Waterloo, ON, N2L3G1, Canada

Received: 14 November 2020 Accepted: 24 February 2021 Published: 01 March 2021

Background
Changes in the quality-of-life (QoL) of family caregivers as they care for their loved ones with dementia over time may affect the quality or level of care that these caregivers provide. We do not know if validated instruments exist to directly measure this quality or level of care. The purpose of this systematic review is to identify validated instruments for measuring the quality or level of care provided by family caregivers of persons with dementia.
Methods
We will include articles containing a validated instrument or questionnaire designed to measure quality or level of care provided by the aforementioned group of caregivers. The included articles may utilize the tools in primary or secondary data analyses, or evaluate the tools' psychometric properties. The following electronic databases will be searched from inception date to the present: Medline, CINAHL Complete, Cochrane Central, and PsycINFO. We will also search the gray literature, the reference lists of included articles, and contact experts in the field to help identify relevant instruments. Included articles will be required to report on an instrument measuring at least one of the following outcomes: quality of care, level of care, appropriateness of care, amount of time spent providing care, and caregiver performance. Two reviewers will independently screen retrieved citations, extract data, and assess the methodological quality of each included article. A narrative synthesis method will be used to describe the findings.
Discussion
Results of this systematic review will show whether validated instruments exist to measure the quality or level of care provided by family caregivers of persons living with dementia. This will make it possible to develop initiatives that are targeted towards improving the quality or level of care provided by family caregivers.
- aging,
- family caregiving,
- dementia,
- Alzheimer's disease,
- quality of care,
- level of care,
- population health
Citation: Afeez Abiola Hazzan, Joyce O Hazzan, Mark Oremus. Measuring quality and level of care provided by family caregivers of persons with dementia: protocol for a systematic review of validated instruments[J]. AIMS Public Health, 2021, 8(2): 206-212. doi: 10.3934/publichealth.2021016

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Abstract

Background

Changes in the quality-of-life (QoL) of family caregivers as they care for their loved ones with dementia over time may affect the quality or level of care that these caregivers provide. We do not know if validated instruments exist to directly measure this quality or level of care. The purpose of this systematic review is to identify validated instruments for measuring the quality or level of care provided by family caregivers of persons with dementia.

Methods

We will include articles containing a validated instrument or questionnaire designed to measure quality or level of care provided by the aforementioned group of caregivers. The included articles may utilize the tools in primary or secondary data analyses, or evaluate the tools' psychometric properties. The following electronic databases will be searched from inception date to the present: Medline, CINAHL Complete, Cochrane Central, and PsycINFO. We will also search the gray literature, the reference lists of included articles, and contact experts in the field to help identify relevant instruments. Included articles will be required to report on an instrument measuring at least one of the following outcomes: quality of care, level of care, appropriateness of care, amount of time spent providing care, and caregiver performance. Two reviewers will independently screen retrieved citations, extract data, and assess the methodological quality of each included article. A narrative synthesis method will be used to describe the findings.

Discussion

Results of this systematic review will show whether validated instruments exist to measure the quality or level of care provided by family caregivers of persons living with dementia. This will make it possible to develop initiatives that are targeted towards improving the quality or level of care provided by family caregivers.

Acknowledgments

The authors wish to thank Jamia Williams for her help with the literature search strategy.

Funding

This review will be funded by the State University of New York (SUNY) at Brockport.

Author's contributions

AAH conceived the study and led the design and the writing of this manuscript. JH and MO contributed to the writing of this manuscript. All authors read and approved the final manuscript.

Conflict of interest

The authors declare no conflicts of interest.

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