Commentary

“See the half-filled glass and move forward” parental experience of a single mother of two daughters with cognitive disabilities

  • Received: 31 October 2017 Accepted: 22 March 2018 Published: 27 March 2018
  • The aim of this research is to give voice to a single mother of two grown up daughters with cognitive disabilities in order to examine her parental experience. The narrative approach is used in this study. The research tool is an in-depth narrative interview. The interview was recorded and transcribed and the findings divided into key themes that were analyzed in a holistic fashion combining formative and content related aspects. The research finds that this special type of parenting is complex and full of challenges. The mother adapted ways of coping that helped her on her parental journey. Her means of coping were cognitively produced and focused on emotions, with three guiding principles throughout: Seeing the glass as half full, relating to her daughters as normal and the desire to look after her daughters herself and not move them to an external framework. It appears that her optimistic personality influenced her positive parenting style. The research also found that support provided by nuclear family contributed to reinforcing the mother’s internal resources and enabled her to maintain a balance between caring for her daughters and developing a personal life and even a new relationship. We hope that insights from this study will enable educational and professional staff to provide appropriate and effective support to mothers of children with cognitive disabilities and consequently create a platform for fruitful and effective collaborations between them and educational and welfare institutions as well as framework that accompany their children after their school years.

    Citation: Rivka Hillel Lavian. “See the half-filled glass and move forward” parental experience of a single mother of two daughters with cognitive disabilities[J]. AIMS Public Health, 2018, 5(1): 64-88. doi: 10.3934/publichealth.2018.1.64

    Related Papers:

  • The aim of this research is to give voice to a single mother of two grown up daughters with cognitive disabilities in order to examine her parental experience. The narrative approach is used in this study. The research tool is an in-depth narrative interview. The interview was recorded and transcribed and the findings divided into key themes that were analyzed in a holistic fashion combining formative and content related aspects. The research finds that this special type of parenting is complex and full of challenges. The mother adapted ways of coping that helped her on her parental journey. Her means of coping were cognitively produced and focused on emotions, with three guiding principles throughout: Seeing the glass as half full, relating to her daughters as normal and the desire to look after her daughters herself and not move them to an external framework. It appears that her optimistic personality influenced her positive parenting style. The research also found that support provided by nuclear family contributed to reinforcing the mother’s internal resources and enabled her to maintain a balance between caring for her daughters and developing a personal life and even a new relationship. We hope that insights from this study will enable educational and professional staff to provide appropriate and effective support to mothers of children with cognitive disabilities and consequently create a platform for fruitful and effective collaborations between them and educational and welfare institutions as well as framework that accompany their children after their school years.


    加载中
    [1] Ben E, Milstein E, Sagiv N, Mapping Centers for Families with Children with Special Needs-Research Report. Myers JDC Brookdale Institute: Center for Research of disability and Employment of Special Populations, University of Haifa, 2011. Available from: http://brookdaleheb.jdc.org.il/_Uploads/PublicationsFiles/581-11-Mapping-Support-ES-HEB.pdf (In Hebrew).
    [2] Kaufman T (2008) Life in the shadow of disease-Influence of Mental Illness on Healthy Siblings. Available from: http://www.hebpsy.net/articles.asp?id=1723 (In Hebrew).
    [3] Katzenelson A (2005) What's Between Parents and Children: Psychology of parents and children. Netanya: Amihai (In Hebrew).
    [4] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 31–51.
    [5] Tyler Y (2001) Family's Coping with Exceptional Children. Jerusalem: Szold Institute (In Hebrew).
    [6] Salomon S, Yirmiah N, Korin-Kari N, et al. (2007) Parenting and Autism: Attachment, Parental Insight and Accepting diagnosis, In: Cohen, E. (Ed.), Parenting Experience: Relationships, Coping and Development, Kiryat Bialik: Ach Publications (In Hebrew), 253–276.
    [7] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 35–51.
    [8] Jungbauer J, Angermeyer MC (2002) Living with Schizophrenic Patient: A Comparative Study of Burden as it Affects Parents and Spouses. Psychiatry 6: 110–123.
    [9] Brown MA, McIntyre LL, Crnic KA, et al. (2011) Preschool children with and without developmental delay: Risk, parenting, and child demandingness. J Ment Health Res Int Dis 4: 206–226.
    [10] Olsson MB, Hwang CP (2008) Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities. J Int Dis Res 52: 1102–1113. doi: 10.1111/j.1365-2788.2008.01081.x
    [11] Churchill SS, Villareale NL, Monaghan TA, et al. (2010) Parents of children with special health care needs who have better coping skills have fewer depressive symptoms. Matern Child Health J 14: 47–57. doi: 10.1007/s10995-008-0435-0
    [12] Yuen SL, Wai PL (2003) Quality of life parents who have children with disabilities. Hong Kong Journal of Occupation Therapy 13: 19–24. doi: 10.1016/S1569-1861(09)70019-1
    [13] Davis NO, Carter AC (2008) Parenting Stress in Mothers and Fathers of Toddlers with Autism Spectrum Disorders: Associations with Child Characteristics. J Autism Dev disord 38: 1278–1291. doi: 10.1007/s10803-007-0512-z
    [14] Dillon-Wallace JA, Mcdonagh SH, Fordham LA (2014) How Stable is the Well-Being of Australian Mothers Who Care for Young Children with Special Health Care Needs? J Child Fam Stud 23: 1215–1226. doi: 10.1007/s10826-013-9782-6
    [15] Barker ET, Hartley SL, Seltzer MM (2011) Trajectories of emotional well-being in mothers of adolescents and adults with autism. Dev Psychol 47: 551–561. doi: 10.1037/a0021268
    [16] Hartley S, Seltzer MM, Hong J, et al. (2012) Cortisol response to behavior problems in FMR1 premutation mothers of adolescents and adults with fragile X syndrome: A diathesisstress model. Int J Behav Dev 36: 53–61. doi: 10.1177/0165025411406857
    [17] Rand Y, Shkolnik D (2009) Modes of existence: theoretical, scientific and applicative aspects. Tel Aviv: Mofet Institute.
    [18] Mishori E (2014) The Book of Life Journey with Autism: the Life Stories of Parents. Tel Aviv: Mofet Institute, 22: 142–143.
    [19] Tiferet S, Elitzur Y (2007) Coping Crisis and Motherly Growth as Response to Chronic Pediatric Disease, In: Cohen, E. (Ed.), Parenting Experience: Relationships, Coping and Development, Kiryat Bialik: Ach Publications (In Hebrew), 303–330.
    [20] Van RM (2007) Families of Children with Down Syndrome: Responding to "A Change in Plans" with Resilience. J Pediatr Nurs 22: 116–128. doi: 10.1016/j.pedn.2006.07.004
    [21] Antonovsky A (1998) The Salutogenic Model as a Significant Theory in Health Promotion. Megamot 39: 170–181.
    [22] Ellingsen R, Baker BL, Blacher J, et al. (2014) Resilient parenting of preschool children at developmental risk. J Int Dis Res 58: 664–678. doi: 10.1111/jir.12063
    [23] Baker JK, Seltzer MM, Greenberg JS (2012) Behavior problems, maternal internalizing symptoms and family relations in families of adolescents and adults with fragile X syndrome. J Int Dis Res 56: 984–995. doi: 10.1111/j.1365-2788.2012.01580.x
    [24] Smith LS, Anderson KA (2014) The Roles and Needs of Families of Adolescents with ASD. Remedial Spec Educ Rase 35: 114–122.
    [25] Heiman T (2001) Resilience in Parents of Children with Special Needs, In: Issues in special Education and Rehabilitation, 16: 37–47.
    [26] Grant G, Ramcharan P, Flynn M (2007) Resilience in Families with Children and Adult Members with Intellectual Disabilities: Tracing Elements of A Psycho-Social Model. J Appl Res Int Dis 20: 563–575. doi: 10.1111/j.1468-3148.2007.00407.x
    [27] Cohen E (2007) Parental coping and Treatment of Parents. In: Cohen, E. (Ed). Parenting Experience: Relationships, Coping and Development, pp. 20–21. Kiryat Bialik: Ach Publications (In Hebrew).
    [28] Gilad D (2007) Independent Living of People with Disabilities in the Community: The Place of Family. University of Haifa and Joint Israel (In Hebrew), 22–45.
    [29] Singer GH, Ethridge BL, Aldana SI (2007) Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Dev Dis Res Rev 13: 357–369.
    [30] Manor-Binyamini A (2004) Collaboration between parents and multi-disciplinary teams in a special education school, In: Issues in special Education and Rehabilitation, 19: 31–51.
    [31] Lhulman K, Bustan N (2012) Connection between Educational Integration and the Tenndency of Parents of Children with ASD to Remove the Children from Home. Mifgash-La'Avoda Hinihit Sotzialit 36: 91–110.
    [32] Spector-Marzel G (2010) Alternative Mechanisms as Narrative Identity: Modle for the Interpretation of Narratives, In: Kacen L. & Krummer-Nevo, M., Analyzing Data in Qualitative Research, Beer-Sheba: Ben Gurion University (In Hebrew), 63–96.
    [33] Shkedi A (2003) Words of Meaning-Qualitative Research-Theory and Practice. Tel Aviv: Ramot (In Hebrew), 69–73.
    [34] Shlasky S, Alpert B (2007) Ways of Writing Qualitative Research-from Deconstructing Reality to Its Construction as a Text. Tel Aviv: Mofet/Macam (In Hebrew).
    [35] Denzin NK, Lincoln YS (2005) Introduction: The discipline and practice of qualitative research, In: Denzin NK & Lincoln YS (Eds.), Handbook of Qualitative Research, 3rd ed., 1–32.
    [36] Lieblich A, Tucal-Mashiach R, Zilber T (2010) Between the Whole and Its Parts and between Content and Form, In: Kacen L. & Krummer-Nevo, M., Analyzing Data in Qualitative Research, Beer-Sheba: Ben Gurion University (In Hebrew), 17.
    [37] Heiman, T (2001) Resilience in Parents of Children with Special Needs. Issues in special Education and Rehabilitation 16: 37–47.
  • Reader Comments
  • © 2018 the Author(s), licensee AIMS Press. This is an open access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0)
通讯作者: 陈斌, bchen63@163.com
  • 1. 

    沈阳化工大学材料科学与工程学院 沈阳 110142

  1. 本站搜索
  2. 百度学术搜索
  3. 万方数据库搜索
  4. CNKI搜索

Metrics

Article views(3354) PDF downloads(861) Cited by(0)

Article outline

Other Articles By Authors

/

DownLoad:  Full-Size Img  PowerPoint
Return
Return

Catalog